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@ebmrf

EBMRF

We are an all volunteer charity dedicated to raising awareness and funding a cure for Epidermolysis Bullosa (EB) a rare, genetic skin disorder.

4.4K Seguidores

163 Seguidos

77 Publicaciones

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Basadas en las últimas 12 publicaciones

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405

Comentarios Prom.

11

Ratio de Engagement
9.37%

Top @Mentions
  • @adamsandler 8
  • @kaleycuoco 7
  • @joshbrolin 5
  • @kellyclarkson 5
  • @bigbaldhead 4

Top #Hashtags
  • #EB 15
  • #ebresearch 9
  • #rock4eb 8
  • #charity 7
  • #RareDiseaseDay 4

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Últimas fotos y Vídeos

170 8

hace 1 semana

Look what just came in the mail! We are so proud to support the work of Drs Dennis Roop, Anna Bruckner and the entire team at @childrenscolo and The Gates Center for Regenerative Medicine, University of Colorado. “We’re going for the moon shot, we’re going for the complete cure” says Roop. The Gates Center is one anchor of The EB iPS Stem Cell Consortium which receives joint funding from @Ebmrf @ebresearch and @cureeb To read full article, visit our weEBsite #research #cure

51 1

hace 1 mes

Let’s cook up something special for charity! Thank you @stayinhomecooking for including us in your delicious fundraiser. Check out recipes from EB supporters @kaleycuoco and @mrtankcook @bridgetmoynahan along with other generous celebrity cooks. New recipes each week! Everything from cocktails to desserts. #foodheals #charity #eb #quarantinecooking #comfortfood #cookingforcharityy

92 5

hace 1 mes

TUNE IN ALERT! Monday May 18 9:00am PST with @kaleycuoco on @todayshow in support of Backstage Pass. LAST DAY TO BID on virtual private meet and greet with @joshbrolin @kellyclarkson @courteneycoxofficial @kaleycuoco @joshgad @bigbaldhead @adamsandler to raise funds for critical medical supplies for EB families #backstagepass #charity